Community Advisory Board
MADRC Community Advisory Board
The purpose of the MADRC Community Advisory Board (MCAB) is to guide and inform the Massachusetts Alzheimer’s Disease Research Center (MADRC) Outreach, Recruitment and Engagement (ORE) Core about how to optimize equity in research participation so that everyone is able to experience the benefits of research innovations and receive equitable high-quality care.
“I am the Program Manager for the Boston University Alzheimer’s Disease Research Center.”
“I’m a Senior Community Coordinator, who works with low income housing residents, assisting them with maintaining and sustaining healthy lifestyles while living in their current communities. Providing them with all resources needed to sustain a peaceful and enjoyable life.”
“I oversee diversity initiatives for the Massachusetts and New Hampshire Chapter working in collaboration with community and public agencies, research centers and faith communities to raise awareness about Alzheimer’s disease and resources available for individuals and families.”
City of Boston Age Strong Commission
“I oversee the Age and Dementia Friendly Initiative for the City of Boston. Work to improve policies, procedures and protocols to make Boston a more age and dementia friendly city.”
A4 Research Study Participant
“I am retired and currently volunteering as a Research Ambassador for the Massachusetts Alzheimer’s Disease Research Center.”
Ellen DiPaola, JD
Honoring Choices Massachusetts
Since 2013, as President and CEO I work to improve access to information and care planning tools so all adults can make a personal health care plan to get the best possible care today and over their lifetime. We support hundreds of Honoring Choices Community Partners who use our programs and tools to help adults make a plan and connect them to care in their community.
Nuevo Dia ADHC
I’m marketing Director and liaison with the Hispanic aging community.
I am a long-distance caregiver. I am also State President, of AARP Massachusetts and Co-Chair of the Massachusetts Taskforce to End Loneliness and Build Community.
Union Capital Boston
As Director of Partnerships my role is to build and maintain relationships with all Union Capital Boston (UCB) partners. I bring the partners to the UCB stage to share about all the great resources they have to offer and to share out important information to the Boston/Greater Boston community
Central Boston Elder Services
My role covers a broad range of functions which include, but are not limited to, media relations, marketing, communications, public relations, advocacy, outreach, development, event planning, and fundraising. I also foster, and partner with internal partners and external companies on medical related projects aligned with print, IT, and website assignments
Bright Focus Foundation
BrightFocus funds global research to understand, prevent and treat Alzheimer’s disease, macular degeneration and glaucoma. We work in the greater Boston area to bring engaging brain health resources to under-resourced communities.
Mass Executive Office of Elder Affairs
I oversee the Aging and Disability Program (creating collaborative partnerships with community agencies serving older adults and people with disabilities). This partnership is called Aging and Disability Consortia.
I am a Justice, Equity, Diversity, Inclusion (JEDI) change management consultant who teaches organizations/companies how to create and integrate their equity, inclusion, and growth strategy.
City of Boston Age Strong Commission
Jewish Family & Children’s Service
I direct the Alzheimer’s/Related Disorders Family Support Program at Jewish Family & Children’s Service in Waltham (JF&CS). I facilitate the JF&CS Memory Café and a support group for adults whose parent lives with dementia. I founded and coordinate the JF&CS Memory Café Percolator, an international resource for those starting and sustaining memory cafés. I lead Dementia Friends public awareness program for Massachusetts and am part of the statewide leadership team promoting dementia friendly community initiatives. I facilitate the JF&CS Memory Café and the Balancing Act support group for adults whose parent(s) live with dementia.
Dementia Friendly Massachusetts
I direct the Dementia Friendly MA program dfmassachusetts.org, an initiative that helps communities become more welcoming for people living with dementia and their care partners.
I develop and implement the strategy for the chapter’s outreach to the African American/Black community, and other diverse communities to develop lasting partnerships
I connect the community at large/greater Boston area residents to Dimock programs and vast array of services. Establishing relationships/referral systems with key CBO’s providing critical services in those areas.