Longitudinal Evaluation of Familial Frontotemporal Dementia (LEFFTDS)

We are seeking individuals who either carry a known gene related to FTD, namely, MAPT, PGRN, and C9ORF72, or individuals who have a known gene in their family. Participants may or may not carry the gene, and may or may not be experiencing FTD symptoms. The goal of the study is to examine brain changes in gene carriers who do not have symptoms, and find factors that predict disease course in people who already have, or may later be diagnosed with FTD.


For more information, please contact Samantha Krivensky, Study Coordinator.