How to Participate as a Research Subject

Connecting the community to research opportunities

The MADRC research  team is leading the fight against Alzheimer’s disease and related dementias by advancing research on several fronts. Our goal is to better understand how to identify, target, prevent, and fight these devastating brain diseases. We hope to someday find a cure for Alzheimer’s disease and related dementias.

The Massachusetts ADRC is world-renowned for its state-of-the-art multi-disciplinary research in basic, clinical, genetics, neuroimaging, neuropathology and translational science that has implications for understanding the causes of Alzheimer’s disease. We welcome individuals from all walks of life to join us in our efforts to find effective treatments and an eventual cure for Alzheimer’s disease and related disorders.

To learn about research participation:  Road Map to Research Guide

Commitment to Cultural Competency

Our Center is especially committed to including individuals and family members from diverse gender, racial, ethnic, disability, sexual orientation and socioeconomic backgrounds in our research and dialogue to address the health-care disparities that are affecting public health in this country. We believe that it is only through inclusiveness in our research outreach efforts that efficacious treatments can be found for all segments of society.

E-brochures produced by the New England Research Subject Advocacy Group in several languages on clinical research participation are attached. These brochures and other materials on research, including information on neuroimaging studies, social and behavioral research, genetic research and surrogate decision-making in health research may be downloaded from the Harvard Clinical and Translational Science Center (CATALYST) website.

Assurance of Research Subjects Confidentiality

The Massachusetts ADRC has a Certificate of Confidentiality issued by the US Department of Health & Human Services/National Institutes of Health to protect the privacy of individuals who are enrolled in our research. Such a Certificate is used to protect identifiable research information from forced disclosure in any civil, criminal, administrative, legislative or other proceeding, either at the federal, state of local level. A copy of the Certificate is attached.

Please take a moment to review our list of clinical trials and research studies on this website, and contact our study coordinators for more information about participating in these studies. Do read more about What You Should Know About Research Studies (Lo que debe saber acerca de una investigacion) and learn how you can stay informed and involved in research.

Your participation in these research studies will help significantly in the search for a cure for Alzheimer’s Disease! Please call 617-525-3666 to find out more about the studies that you or your loved ones may be eligible for!