How to Participate as a Volunteer Research Subject
Connecting the community with research opportunities
The MADRC research team is leading the fight against Alzheimer’s disease and related dementias by advancing research on multiple fronts. Our goal is to better understand how to identify, attack, prevent, and combat these devastating brain diseases. We hope one day to find a cure for Alzheimer’s disease and related dementias.
The Massachusetts ADRC is world-renowned for its cutting-edge, multidisciplinary research in basic, clinical, genetic, neuroimaging, neuropathology, and translational science with implications for understanding the causes of Alzheimer’s disease. We welcome people from all walks of life to join us in our efforts to find effective treatments and a possible cure for Alzheimer’s disease and related disorders.
For information on how to participate in research : Roadmap To Research Participation
(For Spanish version: Guía para Participación en investigación)
Commitment to Cultural Competence
Our Center is especially committed to including people and family members of diverse genders, races, ethnicities, disabilities, sexual orientation, and socioeconomic backgrounds in our research and dialogue to address health care disparities that are worsening public health in this country. We believe that only through inclusion in our research outreach efforts can effective treatments be found for all segments of society.
Electronic brochures produced by the New England Research Subject Advocacy Group in various languages on participation in clinical research are attached. These brochures and other research materials, including information on neuroimaging, social and behavioral research, genetic research, and surrogate decision-making in health research, can be downloaded from the Harvard Center for Clinical and Translational Sciences website. (CATALYST) .
Assurance of the confidentiality of research subjects
The Massachusetts ADRC has a Certificate of Confidentiality issued by the US Department of Health and Human Services /National Institutes of Health to protect the privacy of individuals involved in our research. Such Certificate is used to protect identifiable research information from forced disclosure in any civil, criminal, administrative, legislative, or other proceeding, whether federal, state, or local. A copy of the Certificate is attached.
Please review our list of clinical trials and research studies and contact the study coordinators for more information on how to participate.
Participation in these research studies will significantly help in the search for a cure for Alzheimer’s disease! Call 617-278-0600 to learn more about the studies you or your loved ones may be eligible for!